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1 Tue March 06 2001 - 20:22:36 Fullname: Frank Mess Email: flk.woodhill.@tinyworld.co.uk Where are you from?: Irvine,Scotland. UK Homepage name: Kieran`s Web Page Homepage: http://users.tinyworld.co.uk/flk.woodhill./index.html/ThisisMe.htm How good do you think this site is: Well done!!! Comments: My Son Kieran was diagnosed with having a Low Grade Tumour (Pleomorphic Xanthoastrocytoma) in August 1999 although 50% was surgically removed the remainder proved too difficult to remove . The location of the tumour was very deep within the middle of the brain on the right Temporal Lobe and was surrounded by major arteries and nerves . As I said Kieran's Tumour was partly removed, but because of its location only 50% was accessible. The other 50% was entwined with nerves and arteries and deemed inoperable. As it was only partly removed there was always the chance of it continuing to grow. This has been the case and was seen on a recent C.T. scan. As you can see on the updates in his web page, he has started to undergo Chemotherapy treatment, this will continue for approx 1 year with C.T. scans being taken at regular intervals to monitor the tumour growth or hopefully shrinkage. Radiotherapy may still become an option at a later date.At present he is in good health. Best wishes for the future. Frank Mess 2 Tue January 23 2001 - 13:26:52 Fullname: Robin Els Email: robinfidlr@aol.com Where are you from?: South Carolina Homepage name: hannahscorner.com Homepage: http://hannahscorner.com How good do you think this site is: Well done!!! Comments: Oh Jennifer..from one mom who lost her Hannah to a brain tumor, to you, another mom that lost her Hannah to a brain tumor, I send you a long, warm, tear stained hug.(((((((((Jennifer and family)))))))). How precious your sweety looks in the picture. I'm a bit overwhelmed at all this..your site is of course amazing, but not quite as amazing at what you are doing..reaching out and helping others. I have found a tremendous gift of strength in doing the same. I pray God's peace, His strength, comfort, and healing for you all, on this journey of learning to live without your Hannah here. I can picture in my heart, our two girls just having a blast up there. They are in goooood hands, and it's those same hands, that help all of us now. Much love....and blessings. 3 Wed January 03 2001 - 00:27:20 Fullname: Edward Villa, Sr. Email: ecvilla@pacbell.net Where are you from?: Greater Los Angeles Area Homepage name: Homepage: http:// How good do you think this site is: Well done!!! Comments: Dear Jerry & Jen, Just wanted to wish you the best you can possibly be on this special day, (Dec 30), and I would like to say, no actually shout, "Happy Birthday, Hannah" Eddie ***Daddy to Angel Eddie, (Goofy), Jr*** "Day by Day member" 4 Thu December 30 1999 - 04:04:46 Fullname: Constance Feeney Email: Craftyconnie6cs.com Where are you from?: Portage, IN Homepage name: Homepage: http:// How good do you think this site is: Well done!!! Comments: My son has a pontine glioma. Our lives have been turned upside down. Trying to find info or meeting other parents experiencing the same or simular things.Our son was diagnosed 8/6/99. Thanks for having this site 5 Sat December 04 1999 - 16:10:28 Fullname: Debbie Rhyason Email: fluffy0@home.com Where are you from?: Calgary,Alberta Canada Homepage name: Homepage: http:// How good do you think this site is: Well done!!! Comments: I am a aunt of a ten yr. old who right now is in the Calgary Childrens Hopspital. We just found out last week he has a brain tumor, He will have surgery on Tuesday Dec. 7th. Your page is wonderfull. I printed it and I'm going to take it to the hospital today to show my sister. Great Page. Thank you. 1 2 3 4 5
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